C-Change eNews
C-Change eNews

Coach K
Mike Krzyzewski

2012 London Olympics
USA Men's Basketball Coach

Dear C-Change Members, Strategic Partners, and Friends,

As I reflect on my experience at the 2012 London Olympic Games, I am reminded by what is possible when greatly skilled players come together to function as a team. I believe the same has been true at C-Change and I look forward to adding my effort to our future collaborative 

I look forward to meeting you at the Annual Meeting.  Your engagement in our agenda is essential to achieving the success of our shared goals.

Coach K
Honorary Chair, C-Change
Annual Meeting



C-Change Annual Meeting
October 2-3, 2012
Renaissance Washington - 999 Ninth Street, NW
Washington, DC

Tuesday, October 2, 2012
8:00am - 9:00am      Breakfast
9:00am - 5:30pm      Plenary Session & Strategy Sessions
6:00pm - 7:30pm      Reception

Wednesday, October 3, 2012
7:00am - 8:00am      Breakfast
8:00am - 11:30am    Plenary Session II
11:30am - 12:30pm   Lunch

C-Change would like to extend a special thanks to the 2012 Annual Meeting Sponsors:

Registrations are still welcome prior to the meeting and on site for the regular registration rate of $350.

For more information about the agenda, registration, travel, and lodging see C-Change Annual Meeting. For questions, please contact Brandi Stevenson at 202.756.1381 or bstevenson@c-changetogether.org with any questions.

See 2011 Annual Meeting for highlights
Videos : : Photos : : Slides : : Program Materials

Mission: Strategic Initiative Milestones

  • Guiding our Strategic Direction - On September 12, 2012, the Mission, Strategy, and Implementation (MSI) Committee met with the Strategic Initiative Chairs and the Policy Committee to review progress toward our shared goals and strategize on 2013 priorities. Annually, the MSI Committee provides pivotal guidance for each initiative and recommends future direction and funding priorities to the Board.
  • For more details, see Strategic Initiatives Progress Report.




  • Illustrating the Problem – C-Change released, ”The Costs of HIPAA to Patients, to Progress, and to the Nation’s Health,” authored by Margie Patlak, MS, Independent Science Writer, Alison P. Smith, BA, BSN, RN, Kristen A. Cox, MS, and Payal Shah, MPH of C-Change, and Robert C. Young, MD, RCY Medicine.  For full text, see Costs of HIPAA
  • Listening to the Patient Perspective – In coordination with the Indiana University NIH ARRA Grant Panel in which C-Change participates, the National Health Council recently conducted focus groups to explore patient and caregiver views on the HIPAA Privacy Rule.  Among the findings, respondents viewed research interests as more important than their own concern over privacy, saw no need for continual re-authorization, and wanted to “fix” the Privacy Rule.  For the full report see National Health Council Report
  • Defining a Solution – C-Change has begun developing model legislation and a political strategy for its members to pursue collaborative advocacy efforts. C-Change continues to meet and collaborate with organizations from the research and patient advocacy communities in this effort.
For more information, see HIPAA Initiative or contact Payal Shah at pshah@c-changetogether.org

Risk Reduction

  • Funding Federal Prevention Efforts – Based on the C-Change Risk Reduction Platform, the Risk Reduction Policy Sub-Committee has identified Federal funding for prevention as a timely priority for action.  C-Change will continue to encourage leaders to support substantial, annual investments in federal funding that should be no less than the current level – without delay or substitution for existing funding. Immediate action is needed to preserve funding and prevent additional cuts in order to sustain life-saving federally funded programs such as breast and cervical cancer screening and tobacco control.  For the full platform, see Risk Reduction Platform and Prevention Fund Fact Sheet
  • Developing Messages and Recruiting Messengers – The Communications Sub-Committee is refining language to better articulate the fact that approximately one in two of all cancer cases are preventable.  They are developing tools to help members promote cancer prevention policies and interventions.
For more information, see Risk Reduction Initiative or contact Payal Shah at pshah@c-changetogether.org

Value in Cancer Care



  • Increasing the Use of Palliative Care and Hospice Care – In continued collaboration with the American Society for Clinical Oncology (ASCO), the Value in Cancer Care Advisory Committee has formed 3 sub-committees to change practice, create capacity, and create demand for specialized palliative care and hospice care based upon the Value Platform.
    • The Advocacy Subcommittee, co-chaired by Joel W. Beetsch, PhD, Celegene, and Pamela Bennett, RN, BSN, Purdue Pharma, L.P., will advocate for the use of palliative care and hospice care services at appropriate points in care; for concurrent use of active treatment, if desired, throughout hospice; for reimbursement for patient-provider conversations around advanced care planning; and for a national research agenda for palliative care and hospice care.
    • The National Conversation Sub-committee, co-chaired by Judith Salmon Kaur, MD, Mayo Clinic Comprehensive Cancer Center, and Wayne Rawlins, MD, MBA, Aetna, will research the knowledge, values, and beliefs about palliative care and hospice care among populations experiencing cancer disparities.
    • The Guidance Sub-Committee, co-chaired by Linda S. House, RN, BSN, MSM, Cancer Support Community, and Diane E. Meier, MD, Mount Sinai School of Medicine, will promote the adoption and implementation of common standards for palliative care and hospice care.
For more information, see Value Initiative or contact Kristen Cox at kcox@c-changetogether.org





  • Strengthening the Cancer Workforce – The Workforce Advisory Committee finalized a National Strategy, Position Statement, and Call to Action for strengthening the cancer workforce.  To date, 26 organizations have endorsed the strategy.  All C-Change members are asked to endorse the strategy.  If you have not done so already , please review and consider endorsing the Workforce Strategy.    Please contact Kristen Cox at kcox@c-changetogether.org with your endorsement and/or questions.
  • Promoting Careers in Cancer – C-Change released an RFP, received 30 applications, and awarded 3 grants for programs to recruit, retain, and support re-entry of individuals in cancer careers.  A portion of the Career Promotion Grants is funded by Susan G. Komen for the Cure.  Grant recipients include:
    • The Gulfcoast South Area Health Education Center will engage high school students from underserved communities to pursue cancer careers and work in their communities, currently designated as Health Professional Shortage Areas.
    • Texas Christian University College of Nursing will implement a model oncology nurse extern program for undergraduate nurses and create a national model for other schools of nursing.
    • Alaska Native Tribal Consortium will train Behavioral Health Aides in survivorship support. Behavioral Health Aides are often the only health care provider serving remote, native communities.

  • Promoting Core Competency in Pain and PalIiative Care – Past C-Change Pain and Palliative Care Grantees at Virginia Commonwealth University recently published, “Pediatric Pain Management Education in Medical Students: Impact of a Web-Based Module,”  by S.  Ameringer, et al, Journal of Palliative Medicine, Volume 15, Number 9, 2012.  A portion of the Pain and Palliative Care Initiative was funded by Purdue Pharma, L.P.  Pediatric Pain Management
For more information, see Workforce Initiative or contact Kristen Cox at kcox@c-changetogether.org.

Health Disparities

  • Creating Transaction among the General Public  and Policymakers – C-Change is developing messages based on the Case and Position Statements to convey the toll of disparities to society and inspire action by policymakers, other leaders, and the public.  Focus groups were conducted at the ASCO Annual Meeting in Chicago, IL and the Intercultural Cancer Council Biennial Symposium in Houston, TX.  A C-Change member survey will be release shortly to gather member feedback on messages and priority actions for eliminating health disparities.  Disparities Case Statement and Disparities Position Statement.
  • Identifying Communities in Need – As part of the Geographic Intervention Project , the Data Workgroup is using traditional and non-traditional data sources to identify communities with the highest cancer burden. A state- and community-level analysis was completed by Tom Tucker, PhD, University of Kentucky, and funded by the North American Association of Central Cancer Registries.  Allicia Girvan, PhD, Eli Lilly and Company has provided pro bono resources to complete an analysis of other community-level health factors. These analyses will help identify potential communities with which C-Change members can partner to address disparities. 
For more information, see Disparities Initiative or contact Tasha Tilghman-Bryant at ttbryant@c-changetogether.org.

Comprehensive Cancer Control (CCC)

  • Preparing Leaders to Make Local Change – C-Change is currently providing technical assistance to the Virginia and Mississippi CCC coalitions in a 6-month engagement to strengthen their coalition focus, infrastructure, and effectiveness in achieving their CCC goals.  The American College of Surgeons Commission on Cancer and C-Change are working in partnership with the consultative expertise of Strategic Health Concepts.
  • Recognizing Excellence – C-Change will be recognizing the following in individuals and coalitions for their excellence in leadership and achievement in comprehensive cancer control with awards at the C-Change Annual Meeting:  
    • State Coalition Impact Award: Utah Cancer Action Network
    • Pacific Island Jurisdiction Coalition Impact Award: Kosrae Comprehensive Cancer Control Partnership
    • Champion Award: Keith Howard of the Wyoming Comprehensive Cancer Control Consortium
    • Leadership by an Elected Official Award: The Honorable Reverend Joseph H. Neal, District 70, South Carolina State House of Representatives
  • Supporting the CCC National Partnership – As one of the 15 national organizations in the CCC National Partnership, C-Change is promoting the resources, tools, and news available for CCC coalitions on www.cccnationalpartners.org.  
For more information, see CCC Initiative or contact Tasha Tilghman-Bryant at ttbryant@c-changetogether.org
Leadership & Membership

Richard B. Gaynor, MD
Eli Lilly and Company

Membership Committee – C-Change welcomes Richard B. Gaynor, MD, Vice President for Clinical Development and Medical Affairs, Oncology Business Unit at Eli Lilly and Company as a new member to C-Change.  

If you have any questions regarding membership, please contact Kinga Bartoszek at kbartoszek@c-changetogether.org.

Policy Committee – In support of C-Change’s growing engagement in policy activities, the Policy Committee has developed procedural guidance for ensuring the success and regulatory compliance of C-Change’s policy actions.  The guidance focuses on policy actions stemming from our strategic initiatives. Policy Charter and Procedural Guidance

If you have any questions regarding policy issues, please contact Alison Smith at asmith@c-changetogether.org.



C-Change would like to recognize the following individuals and organizations for their leadership in the spirit of C-Change's collaborative work: 

  • Charles E. Kupchella, PhD, published, “Colleges and Universities Should Give More Broad-Based Attention to Health and Wellness—At All Levels,” Journal of American College Health, 58:2, 185-186.  See http://dx.doi.org/10.1080/07448480903375946.
  • Maureen Lichtveld, MD, MPH, Tulane University; Harold Freeman, MD, Ralph Lauren Center for Cancer Care and Prevention; Andy Miller, MHSE, MCHES, LIVESTRONG; and Neal Palofax, MD, MPH, University of Hawaii participated in a panel presentation featuring C-Change’s Strategic Initiatives at the Intercultural Cancer Council Biennial Symposium in Houston, TX.
The following leaders and staff presented C-Change’s collaborative work at the 2012 CDC National Cancer Conference in Washington, DC: 
  • Maureen Lichtveld, MD, MPH, Tulane University, "Planning for the Cancer Workforce of the Future: A Competency-Based Approach.” (Panel presentation).
  • Kristen Cox, MS, C-Change, "A National Strategy to Strengthen the Cancer Workforce: A Call to Action" (Panel presentation)
  • Dennis Deapen, PhD, University of Southern California and Payal Shah, MPH, C-Change, “The Costs of HIPAA to Patients and Progress in Cancer Prevention and Control.” (Poster presentation)
  • Anthony Signorelli, Ad Council, and Payal Shah, MPH, C-Change, “Cancer Prevention Messages that Encourage Behavior Change,” (Poster presentation)
  • John Dornan, CEO Roundtable, Alison Smith, BA, BSN, RN and Tasha Tilghman-Bryant, MPH, C-Change, “Uniting Private Sector Leadership and Cancer Control Expertise.” (Poster presentation)
  • Linda House, Cancer Support Community and Kristen Cox, MS, C-Change, “Specialized Palliative Care and Hospice Care: Quality of Life at Every Stage.” (Poster presentation)
  • Tasha Tilghman-Bryant, MPH, C-Change, “The Societal Cost of Cancer Health Disparities:  Making the Case for Multi-Sector Action.” (Poster presentation)


We are reminded often that our successes are made possible only through the tremendous commitment our members make to our collaborative efforts. We are deeply grateful for your generous commitment of time, expertise, enthusiasm, and hard work.  We gratefully acknowledge those listed below who have supported our work in 2012 as of September 10, 2012:

American Cancer Society, AstraZeneca, C. Norman Coleman, MD, Dana Foundation, Jason Denby (in memory of Betty Baker), Eli Lilly & Company, Hogan Lovells (pro bono), Linda House, Legacy - For Longer Healthier Lives, North American Association of Central Cancer Registries (pro bono), Pfizer, Purdue Pharma, Gary and Cindy Reedy, Robert Wood Johnson Foundation, sanofi, State Farm Insurance Companies, and Susan G. Komen for the Cure.

If you would like to contribute to our mission, please contact Tara Arras at tarras@c-changetogether.org.

© 2012 C-Change : : c-changetogether.org